Terminal illness: what financial steps to take and help available



Updated on 25 October 2018

Sarah Coles of Hargreaves Lansdown explains the steps you need to take to organise a loved one’s benefits, pension, insurance and inheritance in the case of bad news.

Planning for now

After a diagnosis, you’re unlikely to be considering anything beyond your parent’s comfort and the emotional impact of such terrible news.

Financial issues are likely to be way off the radar at a time like this. However, you can’t afford to neglect them entirely, because someone needs to plan for his or her day-to-day finances while they’re ill, and someone needs to consider the future too.

One of the difficulties with this situation is that the rules often relate to how long they have left to live, which is a horrible thing to have to ask about, and a horrible thing to read, but in financial terms, unfortunately, it’s best to know.

In the short term, the best approach is to look at his or her current outgoings and how his or her income from pensions, savings and investments meet these.

Think about how these outgoings might change, and how you can plan for them. By looking at this in advance, it gives you an opportunity to see whether you might be able to cut back or whether you might need extra help.

Benefits

You’ll need to look into benefits too. Under the age of 65, this could include the Personal Independence Payment, and over this age it could include the Attendance Allowance.

In both cases, special rules apply for those with terminal illnesses which should mean they won’t have to wait for payments.

Your parent may also be entitled to this or other benefits, depending on his or her circumstances.

This can include help with anything from adapting his or her home to transport. They may also qualify for NHS Continuing Healthcare – which helps pay for nursing care outside of hospital.

If you or another member of the family care for your parent, you may also be able to claim Carer’s Allowance. If you have to give up work to care for your parent, you may qualify for Income Support if you are on a low income.

You should also apply for the Carer’s Credit, which adds to your National Insurance record. If you receive any this or other benefits you may also get the Carer’s Premium.

The complexity of the system may mean you need help from someone like Citizen’s Advice. If your parent is suffering from cancer, you can get help from the specialist benefits advisers at Macmillan Cancer Care.

Carer's Allowance: what it pays, who's eligible and how to claim

Pension

Insurance

They may also have valuable insurances. Some life insurance policies offer a payout on a terminal illness (assuming the prognosis is for no longer than 12 months) – either as a lump sum or as monthly payments.

Critical illness cover, meanwhile, will pay out on diagnoses of specific illnesses – which will usually include terminal diagnoses as well.

Cheap life insurance: how to get the best policy

Grants

Finally, this or here may be grants available from charities, to help with anything from boosting your monthly income to one-off payments for pieces of equipment. Turn2us.org.uk has a useful link to charitable grants in the UK.

Getting the legalities sorted

Get the finances organised

It may not be how you ideally wanted to spend your time together, but the more you can do now, the better and it will make life easier for those your parent leaves behind.

Ideally, you should ask your parent to show you where all the documents are for all his or her accounts, savings, investments and pensions.

If possible, it’s worth consolidating these, so that you don’t have to keep track of or deal with an enormous number of accounts. You can then make a list of his or her assets, along with any account numbers and passwords – kept securely.

You should also list every company they have dealings with from his or her home insurance to his or her gas supplier, which will help you ensure nothing is overlooked.

Read more in our guide to putting your affairs in order: wills, power of attorney and paperwork explained

Inheritance Tax

Your parent’s IHT position will depend on a number of things. If they are married and his or her husband or wife is still alive, they can leave everything to their partner tax-free.

They will also leave that partner his or her Inheritance tax allowance.

If his or her partner has died, the following limits apply:

If his or her partner died before the rules changed, or they aren’t married, they can leave £325,000 plus £125,000 in property. Everything above these sums may be taxed at up to 40%.

With gifts beyond the £3,000 limit, unless you live for seven years after making the gift, it will be subject to tax.

The gifting rules are set up to prevent what’s known as death-bed planning. It means, for example, you cannot give your home away in the last few weeks of your life in an effort to avoid paying tax on it.

You might think you could put money into your pension in the last weeks too – to avoid paying Inheritance Tax on it – but the taxman takes a dim view of this, and is likely to decide this should form part of your estate for Inheritance Tax purposes.

Sarah Coles is a personal finance analyst at Hargreaves Lansdown. The views expressed in this article do not necessarily represent those of loveMONEY.

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